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| Please Note: We receive far more questions than can be answered in this format. In many cases, our Guide, Teri Robert, has already researched the topic of the question and may have information already published on this site. Some questions answered here will be answered by Teri. Dr. Krusz will be reviewing her answers before they're posted to see if he can offer additional input. |
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| QUESTION:
Help! Our 13 year old daughter had a large, 4 cm, AN tumor removed 5 months ago, translab approach. After enduring a 17 hour, 19 minute surgery, the tumor was successfully pulled off the hearing nerve, facial nerve and the brain stem. We commend her team of surgeons for the excellent work! Initially she had facial weakness and weak eye lid control but these two functions have returned to normal, also, she does not have any problems with balance. However, she did loose hearing in the left ear.
Our call for help is finding a way for her to deal with the daily/nightly major headaches. She has been on an assortment of medicine, has tried to sleep up-right in a recliner, and uses either cold packs or heat packs to the head but we just haven't found anything to help her get through this healing process in as little pain as possible. We recognize that the headaches are due to bone dust swimming around in her head and the trauma to the brain, but it is so painful to all of us to see her suffer; screaming out in pain, clawing and thrashing about, etc. Her Dr calls them Migraines, but with all the research we have accomplished and the various spots where the pain is I wonder. Any help would be so graciously appreciated. Thank you REPLY: We are grateful for our daughter's success in having the tumor removed. The headaches may very respond to prophylaxis with some of the newest anticonvulsant agents. All of these have been published on for chronic migraines. In that way she might achieve control of her migraines and have protection from any (hopefully unlikely) seizure-like activity. There's a great deal of information on such medications in Current Pain and Headache Reports, Vol 6, pp480-5. Here's the abstract of the article:
Dr. Krusz |
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